From the Bald Spot

Updated on April 13, 2018
Josephine Jose profile image

This hooliganistic scallyway writes poems about all of the random things that enter her mind.

middle school, high school, heat, fun time, coming of age, multiple sclerosis, MonSters story, walk MS' long walks on the beach

It was a dark and stormy morning (okay, not really). I arose to the feeling that I must have slept on my side the wrong way and just couldn't wake my arm up! That feeling terrified me for the first few hours, but of course, my fatigued butt had to get ready for school that day. The reality of the feeling is that the numbness and tingling drove me crazy for such an elongated period of time, definitely not a pinched nerve like the doctors were to falsely prognoses -- although not the right prognosis, it was definitely not music to my ears. I couldn't even play my favorite instrument of choice during class -- viola, my 7 year buddy.

If you would like to read more about this symptom (I'm telling you, if there were a library for the full story behind each tale, libraries would be even more packed), the National MS Society can definitely help you understand.

https://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Numbness

After those first few months, my symptoms finally disappeared and summer came. Being my ecstatic freshman sporty self, I joined the tennis team and even was able to place in the varsity team my freshman year! I was sure to follow my dream all the way through the semester until the morning of homecoming.

No, I didn't feel well. Heck, I didn't even look well. But my vision was blurry and allergy medicine wouldn't help restore a 20/20 mindset.

So, fast forward to the eye doctor. Yes, a term like optic neuritis scared me, especially with the length and scariness of the term, in addition to my first MRI check. Later on that day, I was rushed to a hospital, where two spinal taps were performed (I may not have been small anymore). But my week there was sure to devastate not only my parents, but also me, especially since I couldn't see my favorite band!! (I swore to my friends that I would have made it to that mosh pit, IV and all)

Multiple Sclerosis.

There, I said that dreaded disease that I couldn't remember at the time

Multiple sclerosis

I was too young at 15 to hear those words, to grow up (I mean, come on, I haven't even had a boyfriend yet! I got a health condition instead).

To read more about the general victims of the MonSters attacks, here's a lovely article from the MS society, whom has helped me from the beginning.

https://www.nationalmssociety.org/What-is-MS/Who-Gets-MS

The usual survivor hears those words in their 20s, but my myelin had already started deteriorating.

https://www.nationalmssociety.org/Symptoms-Diagnosis/Diagnosing-MS

I confess, high school was a blazing furnace, from emotional pains (yes, depression and MS go hand in hand) to constant attacks due to the heat. But guess who survived and made it to college. :)

So, I'm going to be flat out about this, I have depression, which definitely impacted me, especially with the weakened myelin, but I'm getting through now stronger than ever.

But I'm free now.

Free but with about 30 new lesions in both my brain and my spine, one of the scariest things I have ever heard.

If my article has touched you, it would be much appreciated if you would like to help support the MS society. Your money could help us with finding cures, symposiums, and even go as far as to fund dinners to educate people about this disease.

(There definitely are plans for a kick butt[or MS] t-shirt to signify the milestones that I've surpassed through this last odyssey with MS.)

https://www.nationalmssociety.org/Donate

In addition to that, I know that I will be taking part in the Walk MS and, although as the lyrics say, "I'm not sick but I'm not well", I will be at the sidelines encouraging fellow Walk MS teams. Who knows, maybe one day I'll get Mucky and join the annual Muckfest obstacle course to rub more dirt in MS' scars!

http://main.nationalmssociety.org/site/PageServer?pagename=HOM_MUCK_homepage

Right now, I'm hoping that my story can inspire you <3 I just want to say that although I may not know you, you're loved, and I love you! I know that I've found strength by reaching out to fellow MonSters and being able to relate, so positively connect to help you unlock your full self.


© 2018 Josephine Jose

Comments

    0 of 8192 characters used
    Post Comment

    No comments yet.

    working

    This website uses cookies

    As a user in the EEA, your approval is needed on a few things. To provide a better website experience, letterpile.com uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

    For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at: https://letterpile.com/privacy-policy#gdpr

    Show Details
    Necessary
    HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
    LoginThis is necessary to sign in to the HubPages Service.
    Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
    AkismetThis is used to detect comment spam. (Privacy Policy)
    HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
    HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
    Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
    CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
    Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the googleapis.com or gstatic.com domains, for performance and efficiency reasons. (Privacy Policy)
    Features
    Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
    Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
    Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
    Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
    Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
    VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
    PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
    Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
    MavenThis supports the Maven widget and search functionality. (Privacy Policy)
    Marketing
    Google AdSenseThis is an ad network. (Privacy Policy)
    Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
    Index ExchangeThis is an ad network. (Privacy Policy)
    SovrnThis is an ad network. (Privacy Policy)
    Facebook AdsThis is an ad network. (Privacy Policy)
    Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
    AppNexusThis is an ad network. (Privacy Policy)
    OpenxThis is an ad network. (Privacy Policy)
    Rubicon ProjectThis is an ad network. (Privacy Policy)
    TripleLiftThis is an ad network. (Privacy Policy)
    Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
    Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
    Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
    Statistics
    Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
    ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
    Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)